I want to welcome you to Neuro Talk. I am sorry for the trouble your family is experiencing with the condition you mentioned Carisal. There is a search bar at the top of the page, try typing in that illness, and see what thread pops up. I have not heard of this illness before. I googled it and didn't come up with this disorder. Is it called by another name? There may indeed be people on this site you can better direct you. You are welcome here. This is a compassionate group of people, and you can join in on any conversation. You might want to ask the moderators of the site if they have information on this illness. I do wish you and your family all the best. I hope there can be a solution and way to move forward. ginnie