Good idea Dahlek - BB? - got any taste suggestions?
I guess when we loose our senses we come to depend more on what we have left - for me the sensosry PN has resulted in loss of ablity to feel severely (and have the scars to prove it) (and also why you have trouble trying to read my typing - cant feel the keys) - but feel lucky to have sight (which is starting to go but at 50 I'm told reading glasses are normal) - can still smell food, and I "hear like a fox" according to my doctors - can't imagine not being able to listen to music.....
Billye - I put in punch for you last week when I saw a posting on another site describing sjogrens as you just did - and told them it was much more then "just dry eyes and mouth" - didn't a good response .... but if they were afflicted to the degree you are - would understand....
Lets all hang in there

We can carry each others loads where the other is lacking!