Hi, thanks for the advice, I'll try the towel exercises. I'm really lucky as my daughter, Suzi, is engaged to a PT(physical trainer), David. He's really great at designing my exercises (David works with cancer rehab, MS & chronic illness clients), good job really cos my physio hasn't done anything for my foot so far (it's been bad & turning for about 6 months) except give me some pictures of hands & feet to 'play' with
I didn't even know RSD could spread till about 2 years ago, my consultant wasn't that knowledgeable, my new ones ok, just a little slow. I don't know why it's taken so long to spread. I guess maybe my attitude may have masked some of it & I was on oral ketamin for about 10 years, I only came off it about a year ago. You see I got my RSD in an injury from domestic violence, luckily I left the situation just disabled, (he got sent down for manslaughter about a year later!) I've been so determined to beat this & not 'let him win', that I've fought it every step. I think the signs were showing when I came off the ketamin but I didn't see them. It's such a long time since I got RSD I don't really remember what it was like when it first started.
I'm glad I found this site, I think the advice I'm gonna get from here is going to be very helpful