Originally Posted by mrsD

Welcome to NeuroTalk:

I think that anyone with a questionable MS diagnosis, and long term neuropathic symptoms should investigate B12 levels.

The blood work is easy, but interpretation of it is murky.
Doctors in US still think low levels are "normal"... in fact many people below 400 US units can have nerve damage.

This is my B12 thread, with medical links explaining:
[
Post #70 is a paper by Dr. C Snow, with details, as well as the AAFP article from 2003 in the first posts, made for physicians to follow the NEW treatment protocols for low B12.

Also to consider is gluten intolerance. I have seen some people over the last decade on forums, with provisional diagnosis of MS, actually have a gluten problem. But your symptoms do seem more severe than the typically beginning MS patient.
But it is something to think about.

So if you haven't had a B12 level done recently, or you were never given the numerical results of that test, I'd do that now.
It should really be ruled out.