I think Greg said it but it bears repeating...many in our community aren't aware of trials...honestly, many physicians (even movement disorder specialists) don't ever mention the need/opportunity for patients (and controls) to participate in trials during visits.

Slow recruiting means slow progress and increasingly, the low expectations by a sponsor become a meaningful deterrent from working in PD at all. We are continuing to education patients and physicians about this significant need and the willingness/information disconnect. Access to information and channels for action are a big, big challenge. This is one of the reasons we launched fox trial finder (which has recently added search functions for Canada, UK and Australia to the existing US tool). Below you can link to FTF and search for trials that might be a fit for you (interventional -- ie, therapeutic and/or observational -- ie, no treatment but critical research questions). Please consider establishing a profile (we are eager to demonstrate to pharma that there are more PD patients out there willing to participate than they assumed) so that you can be alerted about future trials that may be a fit.

Here is a link to FTF:

https://foxtrialfinder.michaeljfox.org/

Here is a link to the specific Cogane trial (where you can learn about participation criteria and connect with coordinators at sites if appropriate):

https://foxtrialfinder.michaeljfox.org/trial/2424/

Best, Debi