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Old 02-15-2012, 11:34 AM
Stellatum Stellatum is offline
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Join Date: Feb 2010
Posts: 1,215
10 yr Member
Stellatum Stellatum is offline
Senior Member
 
Join Date: Feb 2010
Posts: 1,215
10 yr Member
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I haven't taped myself, but I can see it clearly in the mirror, especially in the evening. I just open my eyes as wide as I can and then let them relax, and I can see the left lid go up higher than the right, and then settle back down to a lower position than the right.

My daughter has a very rare genetic syndrome (Alagille's), and her diagnosis was confirmed by a few harmless but very unusual characteristics of her eyes that the ophthalmologist could see. I recommend that anyone with bothersome eye symptoms of MG, or anyone who's having trouble getting a diagnosis, see a neuro-ophthalmologist. Those guys really seem to know what they're doing.

By the way, even though Cogan's lid twitch isn't specific for MG, from what I read, the only other conditions they know about that cause it are diseases that mostly affect the eyes. So I think this helps confirm my diagnosis.

Abby
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