Quote:
Originally Posted by Koongoo
(sorry if this is a little long... I have never actually talked about it to someone...)
Hi, I am 19 and a Sophomore at CU Boulder. I was hit by a car my Junior year of high school. Even though there were a few pains, I didn't think much about it after I had gotten my stitches out and what not from other injuries. I continued to play football. Every game I was struck in the back and landed on my knee (same one the car hit) at least 2 times a game for about a month. Eventually, I was hit again, landed on it again, and was barely able to get to the side lines. my knee was so swollen the trainer had to cut my pants off. I was diagnosed about 2 weeks later... Sadly... I didn't understand how intense CRPS is... By my freshman year of college I was using a cane to get around due to muscular dystrophy. It was so hard to get around and do basic things, I was forced to go see a physical therapist by my friends. Soon enough we reversed the muscular dystrophy and I lost the cane... but the intensity of my nerves and the area effected has grown... It is so sensitive now I can feel an eye lash rub against the hairs on my knee... I really want the intensity to go down... Someone help?
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I'm so very sorry for what you are going through. Welcome to Neurotalk...I have found lots of great advice on here about different things to try and different treatment options. The people on here are very supportive and we all understand what it is like to live with this daily pain.
Can I make a suggestion? Maybe start a new thread about sensitivity and RSD...I know I don't check the introduction thread as much as I should and I think you will probably get more responses that way.
Personally...I have found that trying to desensitize the RSD areas (there are different therapy techniques to do this) is the best bet and also finding out what things can help relieve the pain itself. It took a long time for me to build up tolerance for normal clothing and stuff touching my skin but now I can wear them. It's not that they don't hurt...more that I have learned to cope with the pain and found little things that help with the pain itself. Heat helps my pain and I also have Lidoderm Pain patches that I sometimes will put on my RSD areas if they are particularly sensitive or I am going through a bad flare where I cannot bear the touch of anything. I have a TENS unit that also helps with the pain...especially in my ankle where I can surround the worst, most sensitive area with the electrodes instead of having to place them directly on the most sensitive area. Everyone with RSD/CRPS is different though so what helps one person might make another person worse. There's also a newer, relatively inexpensive treatment that many have found successful (I'll be starting it soon) called tDCS and some people have found significant pain relief from it. Definitely check out some of the threads on here about it.
Hope you find relief soon!