i have had oculogyric crisis now since 2001. i was diagnosed in 2002. i had taken compazine for so long that it caused this. when it began my episodes lasted up to 10 hours. i hated it, it was scary and hurt. it made my anxiety i had so much worse. no medication has helped me regulate the epiosodes either. has anyone else developed it from taking compazine or reglan?

I am so glad to have found this page. i have always felt all alone on this.