Quote:
Originally Posted by daniella
Hi I just skimmed the responses but a few thoughts
I also have issue with being able to tolerate fabrics,weather,etc. For awhile I wore no socks because of it and still can wear certain kinds. I had to reintroduce them slow and sometimes for ex I will be wearing one sock on and one off. Maybe try different fabrics and weights too make a difference. Also slowly try it for even a few minutes at a time.
As for feeling along I can very much relate. I am not as young as you but can imagine how even younger people can't understand. I think if you can focus on the people who at least try and reach out to them it can help. Even if it means an hour going with a friend on a better day for lunch. Are you or can you go to therapy? It obviously does not take away the pain but it can help to cope and get the feelings out. Have you looked for support groups?
If you want an email buddy I am here too. Stay strong and hopeful
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i honestly and truly appreciate your kind words. yes, i do go to therapy, 2 times a week. i would say it helps being able to talk to my ot b/c she is great and she is so patient with me. i have looked for support groups, but they are all so far from my home. i was recently looking into neuro-psych, which is supposed to include some sort of coping and therapy sessions or something, but unfortunately, my injury has not always been priority in my house. i always say that people will never know what rsd is like until they experience it. i also do not really hang out with friends b/c i don't really have any. and besides, i feel that they do not really get it.
since you have rsd, would you say that you are hadicapped or disabled?