Debbie,
Do you mind if I copy/paste this over at the NPF Young Onset forum? There are so many more de novo patients there and if I recall correctly the Cogane trial criteria wants pre-ldopa patients. I will also promote the Biomarkers project. They are a good group of people but maybe due to denial or shock or something seldom engage in the realities that we obsess over on this side of the fence. I honestly do not even think they know that clinical trials are imperative to finding better treatments. It's hard because they don't identify with that yet; in other words, they are not desperate enough.
Thanks for including us!
Laura