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Old 02-16-2012, 02:21 PM
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Nanc Nanc is offline
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Join Date: Jan 2011
Location: VA
Posts: 975
10 yr Member
Nanc Nanc is offline
Member
Nanc's Avatar
 
Join Date: Jan 2011
Location: VA
Posts: 975
10 yr Member
Default Haven't heard of a name change...

I read it was first called "causalgia" when first presented during the Civil War. Not sure what after that until I was diagnosed in 1992 with RSD (Reflex Sympathetic Dystrophy), now CRPS (Complex Regional Pain Syndrome). My doctors (and I) mostly refer to it as RSD. But most paperwork has RSD/CRPS on it.

I wish they would stop changing the name of it, or just decide on one and stay with it. So many healthcare professionals do not know anything about it, and with another name change it just confuses them even more!

I have CRPS...what?? you know RSD...oh ok! That is how most conversations go with a new dr.
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