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Old 02-17-2012, 07:39 AM
daniella daniella is offline
Magnate
 
Join Date: May 2007
Posts: 2,998
15 yr Member
daniella daniella is offline
Magnate
 
Join Date: May 2007
Posts: 2,998
15 yr Member
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Quote:
Originally Posted by bent98 View Post
I may come off. I keeps me from crying all the time. I was never really cried my whole life but having your back and neck burn all the time will do that to you.

I may start with the Namenda first.

There is one other drug that’s supposed to have no side serious side effects called Neurotropin. It’s been out in Japan for 40 years and been tested here in the US for 10 years. Its amazing it hasn’t been approved yet. It also it’s supposed to help with allodynia.

This is clinical trial but you have to have CRPS to get in. You can request for a compassionate except to try the drug. Again, people have seen good results.
http://clinicaltrials.gov/ct2/show/NCT00006289
For me when I started Cymbalta I spent 2 weeks in the bathroom so nauseous but my pain doctor encouraged me to stay on it cause that issue becomes less. It did but whoa was it not pleasant.
Bent what dose are you on? I was on 120 from 30. I was just wondering if maybe the dose? I went off this and a few others thinking it was not helping but since I have become worse so now I have no idea what was or if it was helping and not. I am going to look up these few other meds. On a side note even if it helps mentally to cope I will take it. Between high pain,little if any sleep a night, and the anxiety/worry around this well you know.
Hang in there all
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