I am so sorry you are facing this. I don't allow any doctor to touch any part of my legs. Even if it is not by the RSD areas. All the ones who have dealt with rsd a lot understand. Some others that are less informed will push it but I have paid too many times for no reason that I don't allow it. Everyone is different though so I am not saying what you should or should not do.
I am so sorry for the limited options in care. Would there be a skin doctor if not an infectious specialist?
I am sorry about your son too and also how that is making you feel. You are a good mom who has a medical problem which is not in your control. I know your son is young but you can see how much he loves you.
Hope things get better