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Originally Posted by aimeewebb
hello everyone, I have just been diagnosed with autoimmune and they are going to begin the testing to see which one that I have. Im looking for someone with information on what to expect. Any info would be greatly appreciated. Thanks
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Hi Aimee,
What sort of autoimmune and who diagnosed you? Autoimmune is a huge umbrella and I wouldn't know what to tell you to expect without knowing whom you've seen. Generally, they do some tests before deciding the problem is autoimmune.
I have Crohn's Disease, which is an autoimmune gastro-intestinal disorder, Lupus (an autoimmune connective tissue disease), and other diagnoses related to the two, such as hypothyroidism, migraines, GERD, Raynaud's, and heart problems.
Oftentimes, it can take years to figure things out and other problems can emerge, as well. Just about out of the blue six months ago, I developed a serious heart rhythm problem and I just had a cardiac ablation done to try to correct it 2 weeks ago. Autoimmune stuff is weird, unpredictable and never boring, lol.
Without knowing what's been going on with you, all I can recommend is to make sure you've got a great primary doctor/internist you trust. That's made all of the difference in the world for me. My internist keeps track of everything, coordinates all of the specialists' care, and has a sit-down with me every 3 months to review and plan.
Best of luck with everything!