Mine started slowly. I knew something was wrong right away but there was no pattern or ryhme or reason to the pain. I had lots of gastro-intestinal trouble at first and it was months before noticing that it was activity that led to pain. It took so long because I was extremely active almost every day. There was a little numbness at first and significant pain but the docs just kept telling me to ignore it. It got diagnosed six years later.

It rules my life and as you all know it's gets hard to keep going some times. It's fear as much as anything that's the big problem. The symptoms can be nearly intolerable and it's a wonder they haven't crossed the line but the fear they will soon be far worse is nearly paralyzing.