I am very sorry to hear about all that your daughter has had to go through...so much for someone who is only 13.

With regards to the temperature thing...what you describe is a little odd. With RSD it is normal for the limb itself to get hot or cold for no reason...but RSD patients usually have very extreme reactions to cold temps and sometimes hot temps. The one thing I have noticed is that since I got RSD in my hands I sometimes have a delayed reaction to heat. Sometimes I will pick up something that is hot and I don't react right away...but it is usually only seconds before I DO register it. I don't know why this is but I assume it is related to the RSD. Cold on the other hand results in an immediate response of horrifying pain and ridiculous swelling.

I don't know that I have ever heard of an RSD patient not FEELING temperature at all...though that doesn't mean much because RSD affects so many people differently. I personally have experienced symptoms which RSD can cause but I didn't know about it (nor did my doctors) until I looked it up specifically and was like, "Yep...RSD can cause it...mystery solved." Hope someone can chime in if they have any experience like this or know someone who has.