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Grand Magnate
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Join Date: Nov 2009
Location: i thought it was in my left pocket
Posts: 4,117
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Grand Magnate
Join Date: Nov 2009
Location: i thought it was in my left pocket
Posts: 4,117
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Hello mrscastillo
Quote:
Originally Posted by mrscastillo7
I'm 30 years old and have been suffering with pseudo tumor for 6years and I'm now getting holes on my head that don't heal or close they leak clear fluid daily and my trama physician says its spinal fluid building up to much and has no place to go but out. I now have sizures glacoma and athsma and diabetes and back pain from all the lumbar punctures. I'm in a bad place in my mind I feel alone in my insomnia world because no one knows how this feels well at least my family dont understand me.but who would its all in our heads LOL
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Welcome to NT! 
I'm so very sorry you are dealing with all of this. And yes, I can understand how you feel when our family/friends don't comprehend what we go thru. It makes for a pretty lonely situation.
We've got several forums here at NT that you might benefit greatly from. Since alot of this has to do with your back, let me give you the shortcut link to get to the Spinal forum:
http://neurotalk.psychcentral.com/fo...sprune=-1&f=22
Also, you might want to check out the Central Spinal Fluid Leak forum:
http://neurotalk.psychcentral.com/fo...sprune=-1&f=78
As you go thru the menu of different forums, you'll see ones that are specific to several of the issues you describe, even the insomnia forum!
Also, if you just need to talk about your feelings because of what this all is doing to you, feel welcome at the Depression/Anxiety forum I go there alot because it's so down-to-earth and others are so willing to help.
We all stick together in this. Please know that you are not alone.
I also wanted to mention that when you get to a forum you'd like to share in, make sure you start a new thread so people will easily see it and you'll get better feedback. At the top left of the screen you'll see an option "New Thread"
Just holler if you need help finding your way around.
It's great to have you!
Caring,
Rae
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