I just wanted to write quickly and thank you all for the advice. I did go off on a bit of a rant there and I appreciate you guys taking the time to read it. Your advice is much appreciated and I will be putting it into action.
Thankfully my doctor seems to be on board and willing to push as hard as he can to help me out... I am awaiting a consult with a neurologist.
Thank you again. Not that I would wish this on anyone, but I am glad to know that I'm not alone.
Cheers
Rayna