Member
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Join Date: Dec 2009
Location: Near Syracuse NY
Posts: 133
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Member
Join Date: Dec 2009
Location: Near Syracuse NY
Posts: 133
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After the appointment
Well I got in right at 1:00 and met with a physicians assistant. I was there over an hour. I brought up the MGUS Cryoglobulins test and she told me I have had it and that I had gotten the million dollar testing. Meaning they tested everything. I told her my symptoms were worse but slightly and that my whole body was effected at times. We did discuss the IBG infusion therapy because I brought it up. Later the doctor came in and said that was for people with increased severe symptoms and he was not sure my situation was that progressive. The fact that I have a lot of strength, am coordinated and look pretty in shape for 59 seemed to make him want to steer me toward Lyrica or Gambian etc.
I suggested another nerve conduction test to compare from 2009. Wonder why he didn't suggest it. Well he thought that was an acceptable idea so come April when he has the time we will proceed.
It did seem to make sense not to take a chance with such an invasive treatment that has to be done in a hospital and is so expensive at this point.
So it was a nice long visit and it was nice to have the PA so interested in my case. Any thoughts. Thanks.
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