First, let me say that I think finding the REASON why someone has a neuropathy should come before throwing a drug at it. Now, I'm saying that knowing full well what a neuropathy feels like and it doesn't feel good! You only have to go to the neuropathy forum here to find all of the many reasons for having one. One many think of immediately is a B12 deficiency. MS also comes to mind. Guillain-Barre is yet another.

Have you tried Tylenol or any other drug for the pain?

Sure, we all react differently to drugs. I'm glad it works for you, Southern Bell. But Gabapentin/Neurontin is one that can not only make MG worse - due to how it works - but has been shown in studies to actually CAUSE MG. I'm not saying that to ward you off of the drug but to make you aware of all possibilities. What you do is your decision.

Do you experience pain only after IVIG? Where you having it before that? If IVIG is causing a neuropathy, have they considered running a chem panel afterwards to see if any of your electrolytes are off? WHERE is the neuropathy? Is it localized or generalized? Can you use something like a "Boo Boo Buddy" on it? That's an actual name of a cool gel pack, used for kids so as to not a cause cold-induced injury to the nerves.

You have to be your own best advocate. You might want to discuss this with your primary doctor, who is supposed to keep your entire health picture in mind. Sometimes doctors throw a drug at a symptom because they want to help a patient and their complaints. Symptoms are not "causes" and a cause, in my opinion, should always be attempted to be found.

Pain isn't fun to live with but neither is an MG crisis. Please talk to someone about your concerns.

Annie