I'm really sorry to hear you're so weak. That sounds like an awful lot of IVIg... I'm disappointed that the CellCept/Prednisone combo isn't helping. I wonder if your doctor would consider plasmapheresis.

I have been thinking of what you say about Imuran, how you didn't realize it was helping until you went off it. I was thinking that my Imuran hasn't done anything, but it finally occurred to me that it's possible it's keeping me from getting worse. I'm just grateful that it doesn't make me sick like it did you.

Thanks for the update. Please let us know how you're doing. I'm thinking of you.

Abby