Originally Posted by bny806

I was just curious if any of yall tested positive for LEMS? I have an immune issue where I don't mount antibodies to things (always negative after vaccinations etc) .. anyhow I still don't have an actual firm diagnosis, but the IVIG works AMAZINGLY.. with my mild tongue atrophy and proximal and distal limb weakness I just wonder if it could be LEMS, and if so should I do something like a PET scan to make sure there is no underlying cancers or issues like that? Just something I have wondered about throughout this process.
(Sorry about all the questions- i just have so many)!