That's a huge dose of IVIG, unless you are doing tiny doses each week. Do you know how many grams per treatment you are getting? Please be sure you have weekly kidney function tests. I know someone who ran into trouble using a protocol of high dosage IVIG.

As for it not really working....well, that happens. Sometimes the MG is just bigger than the available treatments. Don't stop looking for answers, because the answers ARE out there!