yup exactly, it makes me ****** off. someone with ehlers danlos syndrome needs to be monitored more than a healthy person. the medical review process is a joke. i'd like to see how they review these things. try telling someone whose body is on fire to just wait thirty days between visits, lol.

i work at a well known hospital/university too. i cant imagine if i had self insurance, not through my employer, i wouldve gone to a bunch of crappy in network pts (not to say all in network pts are crappy but a lot of them are) and i wouldve run out of money and gone on disability.

its pretty frightening.

altho i have to say obsessively reading on the internet has helped me the most. that + taking certain things (not all things) from my pt.. such as not letting my head flop around.