Originally Posted by catra121

I am very sorry to hear what your daughter is going through right now. As hard as it is to have RSD...I think it is sometimes harder for our loved ones who want to help us but don't know what to do. I have never taken percocet...so I can't necessarily say what sort of dose is too much for someone with RSD. We are all different and respond to different meds and doses.

But more important I would think is that she didn't take her other meds. Some of those are ones that need to be taken daily, multiple times a day in most cases, and it can really mess you up if you miss doses or don't take them regularly. When my RSD pain got worse at the beginning of last year the doctors put me on valium and it really knocked me out to the point where I felt like at least when I was sleeping I wasn't in pain. But my boyfriend told me I did a lot of very weird things (all of which I do not remember) and maybe this is the sort of thing your daughter is going through right now.

I can tell you that when it comes to medications and RSD that it is important to have a doctor who works with you to find the right combination of meds to help with pain and other RSD symptoms. You do NOT want a doctor that will just keep throwing pills at you to shut you up. I switched doctors, went off ALL my meds, and am now working with my current adding things back in one at a time. I am on far less pills and I feel a lot better. While we all have to make our own decisions when it comes to the meds we take...the point that needs to be driven home with the doctor is that if what she is taking now doesn't give her enough relief then she's not taking the "right" meds and something else needs to be tried.

I cannot advise you whether your daughter may be taking these things because she has a problem with them or if it is because at least when she is out of it she is not in pain. RSD pain is SO horrifyingly bad and most of us would do anything to make it go away. My advice would be to sit down and talk with her about it. Don't accuse her, please don't make assumptions about what she is going throgh or WHY she is doing something...instead just try to let her know that you are there for her. Support from family and friends has gotten me through the rough times...but many who have RSD don't have that support from family and friends and then they feel like they are alone and have no where to turn. Imagine...you are in horrifying pain all day every day and the doctor is no help and you feel like no one understands or is there for you.

That doesn't mean that you ignore the problem that is there. Clearly...she is not getting proper treatment for her RSD. Ask her how she is doing...ask how well the treatments are going...offer to come with her to doctors appointments as support. If she says she is just in too much pain and cannot get through the day...encourage her to try to find a new doctor. I don't know what all she had gone through (if she has tried a variety of treatments or if the focus has mainly be on meds)...but that is something to ask.

It obviously seems like you care...you need to make sure that she knows that and knows that she is not alone. I don't envy you for the situation that you are in. If you have any questions or need to get a better understanding of RSD and what it does to those of us who have it...please ask. Or if you want to know about some alternative treatments...things we do to help us get through each day, etc...we can always help out with stuff like that as well.

Take care.