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Old 02-27-2012, 09:56 AM
windrivermaiden windrivermaiden is offline
Junior Member
 
Join Date: Mar 2011
Location: CALIFORNIA
Posts: 15
10 yr Member
windrivermaiden windrivermaiden is offline
Junior Member
 
Join Date: Mar 2011
Location: CALIFORNIA
Posts: 15
10 yr Member
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fortunately you have not tried everything yet. There are still some things to try. All the antidepressant drugs, all the anti epileptic drugs, cognitive therapy and believe it or not, drug addiction therapy. Botox therapy, nerve blocks, topicals like ketamine, compounded drugs in lotion bases. micro vascular surgery, radiofrequency ablation. marijuana. yoga (with medical therapy) meditation. Massage (yeah even when you think you'd better never let anyone near that area let alone touch it!) Anti viral, if you have a herpatic condition. accupuncture

If your Neurologist and neurosurgeon are giving you the old "its all in your head" then you need to get new ones. Go to a pain specialist who deals with neuropathy and neuropathic pain. There is even a magazine out there that deals with chronic pain called Pain Pathways. You can google it.

Do not get discouraged yet. You may have to reframe your life so that it is truely one day at a time..maybe even one 30 second interval at a time. but the minute you give into being a victim of your pain, you are on the down ward slide.

I've had a severe pain complex for over 25 years, the root of which is a chickenpox virus infection of the brain side of the ganglia where the major cranial nerves come out. It causes severe pain in half my head, gagging and choking reflex. icepick pain in my ear and throat behind my eye and a terrible taste sensation in my mouth. Because it is pre ganglian, all the sensations the nerves of my face , head and neck are affected. I can be feeling pain and numbness at the same time. Hot and cold. But I"m not going to give up and let my life be over. I didn't even get a diagnosis for 20 years.

Life is not over just because you have pain. you need an advocate to help you learn to get your best life despite the pain.

What area are you in?
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