Thread: Support for family dealing with someone with pcs
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Old 02-28-2012, 08:40 PM
AllAmericanAmy AllAmericanAmy is offline
Junior Member
  
Join Date: Jul 2011
Location: Southwest Michigan
Posts: 57
10 yr Member
AllAmericanAmy AllAmericanAmy is offline
Junior Member
 
Join Date: Jul 2011
Location: Southwest Michigan
Posts: 57
10 yr Member
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oh yea - you mention in your "signature" that cognitive therapy has been suggested but you can't afford it. IMHO, you can do about as well by reading the forum and TBI guide and getting info about what to do or not to do. The doctors we have seen (many in diff areas of expertise) all play a rather passive role - bottom line is there is not much THEY can do for your hubby.

Time will help. Nutrition can help. Lack of stress (as you mentioned) can help.

Cognitive things can be worked on in many, many ways. From books, word searches, games, work and life in general are all cognitive exercises.

If he at some time is willing to use the computer, www.pogo.com is a great game website that has tons of free games and no membership fee (though you can join if you want additional games). There is also a site called www.lumosity.com that has cognitive based games to improve specific brain functions. It is free to try for 3 times then is pay based. It's a great site thought with tracking of how you're doing and suggestions for other games to help you improve problems areas.

Take care!
__________________
Blessings to you...
AMY

Wife of 54 year old hubby who sustained TBI January 2011 downhill skiing.

Hubby is: Machinist, off work since injury. 70% of the time feels really, really rotten (better! Used to be 99% of the time) 30% of time he just feels bad but can push thru to do something.

Current Symptoms: Light & noise sensitivity, brain fog (lessened by Zoloft), extreme fatigue, balance issues (walks with cane), cognitive problems (slowed & more difficult thinking), overwhelmed easily. Difficulty falling asleep but then could stay asleep for 12 hours or more
.
(Uses CPAP machine while sleeping due to apnea NOT caused by TBI)

All symptoms increased by stress, fatigue & crowds. Jostling movements (walking briskly, bumpy rides) are VERY bad & cause severe set-back

Seems to help: Taking 150mg Zoloft at night for symptom control, especially helps with "brain flips / swishing when walking" and brain fog (helped). 300 mg Gabapentin (100 3xdaily) for headaches (works pretty well. Minor headaches are eased by combined Acetaminophen & aspirin). Xanax for anxiety, but also seems to slow the overstimulation feeling when out-and-about. Feels best while lying down (vertical position seems to bring on symptoms)

Misc: Clear EEG, clear MRI'S (2 of them). No cut, bump or bruise after accident - all damage internal
.
Oddly enough, he's not bothered at ALL by tv
.
Praise the Lord he has NO difficulty driving.
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