For everyone and maybe we are all a bit pain free tonight.
So, I am beginning to learn something, I really don't think that the Rep from the company is always the best person to be programming or reprogramming these units. I'm believing that there is someone in that MD's office that is the expert.
This is an art form,and no rep, in fairness they are not trained the same way and have a general idea of many different areas, whereas somebody in that neuros office specializes.

In fairness I'm just starting to learn this process but,,,,,,when the docs PA started to make the feel of the leads go in a circle, I knew what the comparison now was. the intricacies of this one little part is positive now it's negative what does that do, how do I literally "pull" this pain away from where I need to,,,,,I'm an intelligent woman and I know an art form when I see it.

I don't know that the reps have time, skills,training or damn it, understanding of this disorder to do that well with a unit that really works for us. I spoke to this medtronic Rep I see on Fri and said I 'd like a new group, don't want to loose what I do have, and in fairness I'm not a pushover and she picked up on that pretty quickly and I asked her do you know anything about the disorder? and she said no but I've done inter cranial lead placement,,,,,SO WHAT??? that's not what this is, don't try and impress me, impress me by saying, no by I will by Friday, that would give me more confidence.

There are so many factors involved but I've had this since late Jan, they'll bury me with it. It's not perfect (I'm too lazy to change my font!!) it won't be for a long time but it does reduce the pain and isn't that what we all say,,,oh god if it would just break even a little,,,this is way more than a little.
I'm backing off meds, I' generally just feeling better,,,not fighting pain so much perhaps?

I've learned that I will most likely have to go back in and have them move this lead slightly, had hoped I was done with surgeries but to get the best performance from this we need to do it before too much scar tissue forms. He'll make a small incision and use the extra lead in the loops above my ear, find the right lead and pull it back just enough so it falls down rather than going up. If it works (and these are all ifs) then I should get better pain coverage on my lower jaw,,,,that's the goal. Probably mid March, we give this rep a fair shot,,,I'm staying open,,,if that doesn't work, back to cleveland let them try a reprogram and in a day if no results, back in OR,,,,I'll keep you posted if I end up going that route,,,

My prayers go out to all of you with units that you know you should be getting better results from and aren't, hang in there and don't give up,,,medicine is a service related industry,,,you wouldn't accept a bad meal at a restaurant that you're paying for,,,don't accept less than quality medicine,,,just keep trying, you'll find the right person......Peace, Beth