My insurance finally approved my Neuro and MDS's request for me to have genetic testing. Today I had my blood drawn and it will be sent to a lab across the country, Athena Diagnostics. They are testing for Parkin and PINK1. I am curious to see what shows up. I did some reading up on PINK 1 and it sounds a lot like me. Cervical Dystonia, symmetric presentation, stiffness and dystonia. The results should be back in a few weeks. I will keep you all posted!