i also am new here but i'll figure out how it all works. i wwas Dx about 10 yrs ago. luckly no change in 10 yrs. docs say i may have had syringomyelia since 1976. as most of us know they realyy can't tell whenor how we get it. the pain is unreal and at times hard to explain. mine is in my neck very small compared to most for sure. i use to go to another chat site yrs ago. i am glad i found one again