Junior Member
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Join Date: Jan 2012
Posts: 9
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Junior Member
Join Date: Jan 2012
Posts: 9
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A quick update, and in case anyone recognises my test results!
All my bloods are now back from the tests the neurologist carried outin January.
The MG antibodies were negative, as was just about everything else.
>Apart from the voltage gated potassium antibodies which were at 122 (normal range 0-100)<
They are doing another EMG & Nerve Conduction Study today.
Based on those blood results, he mentioned something called Isaacs Syndrome, and also that whilst the antibodies to MG weren't detected, it doesn't mean its out of the frame yet.
If anyone has any comments I'd love to hear them. I presume they'll be looking for MG as well as Isaacs at the EMG later today.
I'm not taking any drugs or anything that can affect the EMG (I'm struggling to feed myself on liquids anyway so little I can take that will have any affect).
Wish I had something simple, and glad at the moment they are saying "ALS is out of the frame" (when I keep asking them).
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