Melody,
The nurses are paid very well - to do one thing - take care of the patient! I've had nurses sit and read - or do paperwork - etc... as long as they are watching Me - Doing vitals every 15 minutes for first hours - then at least every hour - thats my concern.... Sometimes we would watch TV together, but this is their job - to watch Alan - not to sit around and be entertained... so dont worry - there is lots of paperwork involved usually - so that takes time... they need to re-order supplies, etc.. so should inventory your supplies, etc.... Also, they should NOT leave Alan alone - they are there to make sure he is ok....

I used to get 20 mg in 4 1/2 hours - with step up rate of 25 - 50 -75 - 100 during the first hour - then held at 100... some people can tolerate much faster rates - again - if side affects start - they should slow down the infusion (the docs will tell you that)..... Also, my infusions were weekly for months, then evey other week - again, depends on the doc and how he sees Alan progressing.....