Quote:
Originally Posted by wfessler
I was on vicodin and muscle relaxers for the last 2 yrs because of burning/sharp pains in my neck and shoulder blades. Some days I can't even move my head. So my FMD finally orders an MRI and it shows degenerative disk disease, 3 herniated disks impinging on the thecal sac, and a 2 cm syrinx. The pain has gotten so bad, I sit and cry most days. Calling off work so often, I am surprised I haven't been fired yet. So I go to a neurosurgeon because now I have trouble walking, and she tells me I am not a candidate for surgery. The Syrinx is not causing the pain, numbness, headaches, nausea and slurred speech. So I go to another doctor who prescribes therapy, injections in my neck, and neurontin. No one will give me anything for pain and I feel like a complete waste to my husband and 3 children. I live in PA and can't seem to find any doctors who understand this condition. Everyone I talk to medically make me feel like it is just degenerative pain. No one has even said Syringomyelia. Do doctors just not know what it is or am I making it worse than it is. Help please, before I crawl out of my skin....  |
i have SM in the neck also. it took me a very long time to get a doctor to listen to m eabout the pain. i was seeing a Chiroprator for about 3 yrs one day he said get an MRI and that was when it was found after that it took about 5 yrs to get a doctor to listen to me. i actually took a book to the doc and websites for him to look at. we have to remember there is so much that goes wrong they can't know it all. after oxycotin and a couple other meds now i am on 240 mg of morphine a day plus 10 mgs of percocet every 4 hrs. stilol not taking all the pain away but it does help. good luck remember some times we have to educate the doctors over again. i know this is 2 yrs later but who knows.