The greatest thing you could do for yourself has already occurred. You, came here and opened up searching in an effort to find others of similar situations who will gather around you.

As for me, my situation is far different, but I stalled here on your post thinking I would bring to you a parent's perspective seeing their child endure a seizure. Our eldest of four is beset with complicated multiples of psychosis and the awful side effect not of meds, but of the compound thoughts which race around his mind is the onset of what is described as a psychogenic non-epileptic seizure. These have been known to hit him many times in an hour several hours throughout a day, although in the past year we have thrilled to realize he has experionced only ONE.

We never know why they manifest. He has been through observational study at a nearby medical center complete with EEG and Video monitoring. All we learned was stated in my first paragraph. No means to avoid, alert, forewarn, or calm such episodes was provided to us. Thus, we watch over our son with awareness tomorrow could be another, while taking the blessing of freedom from it if nothing occurs.

I pray you will connect with others here in this safe place who will have similar issues through which you may each share and compare, knowing there are folks who deeply grow to care for you. That very deep sense of care in this place is exactly what it is all about. May you find it and have companions who gather around you.

Blessings on you,
Mark56