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Old 03-02-2012, 10:12 AM
Terry Mooney Terry Mooney is offline
Junior Member
 
Join Date: Nov 2011
Location: Vernon, BC
Posts: 12
10 yr Member
Terry Mooney Terry Mooney is offline
Junior Member
 
Join Date: Nov 2011
Location: Vernon, BC
Posts: 12
10 yr Member
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Quote:
Originally Posted by LizaJane View Post
My neuropathy began in 1996. By 1999 I had two abnormal EMGs. I think had a bunch of other abnormals. I went to Mayo and had more abnormals.

Today I had an EMG as preparation for spinal surgery and the sensory nerves were normal. I haven't gotten the final report, but he neurologist who did the test said all nerves were normal, except my peroneal, which have never been normal. I do have a new L5 radiculopathy with denervation of the L5 muscles on the left, but it's not new enough to be causing my pain. (that's from the spine)

After seeing the results, one of the neuros said: That means the original diagnosis was wrong, and you never had neuropathy!

Yah, right. I told them I had learned how to care for it--the secret is feeding the mitochondria needed to grow axons (CoQ10, acetyl L carnitine) and taking antioxidants to keep inflammation from causing harm. In addition, keep using the muscles, whether you feel them or not. That was the secret I learned on this forum.

And really, my symptoms are so small compared to 10 years ago. Yes, they're not gone, but they are not that significant.

It can be done. If you've got an idiopathic small fiber neuropathy, or long fiber, and don't have an ongoing CIDP or Sjogren's picture, your peripheral nerves can heal.
Yes, neuropathy does improve. I discovered MaxiEnergy, a mitochondrial booster chewable cocktail tablet in the fall of 2011 after two years of a protracted diagnostic process. This product is composed of CoQ10, d-ribose, Aceytl L-Carnitine,Creatine Monohydrate,Alpha Lipoic Acid,L-Carnosine and Ascorbic Acid.
I have almost no neuropathy in my hands and encouraging progress with my feet although they are still problematical. You can learn about MaxiEnergy at
Oramune.com. My posts describing my particular journey through peripheral neuropathy are in this thread. I remain hopeful that I will be free from this curse in a short time.
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