Hi Barbara and Kmeb.

Barbara, Alan has been diagnosed with (finally, after 18 years), with Chronic Inflamattory Demylinating Polyneuropathy. He's had the first 5 rounds of the ivig.

Oddly, right after I posted my question to you guys about the nurse and the headphone thing, we got a phone call from the company's nurse and she took all of Alan's background information, what meds he's on, etc. She was very nice and she explained EVERYTHING TO ME.

Alan's first infusion is on the 9th and 10th of April. The meds and supplies arrive via Fed Express on Saturday. I then asked her the question about the visiting nurse and she laughed and said "Melody, if you were expecting the cleaning lady to come, would you let her watch television"?. I started laughing. She explained how the nurse will monitor his blood pressure, his vitals, everything. I told her I'd make coffee and muffins and she laughed her head off and said "everybody should be like you". She was very nice and very informative. So I learned lots of stuff today.

She also explained that most infusions are not done with pumps. That was a new one to me.

So we're all set.

I can't thank you guys enough. You got me through all of this.

Melody