amberdnae,

I'm so sorry that you are going through this.

I had iicp, increased intracranial pressure, for six months because I sustained a concussion. It made me very ill. And it may have damaged my brain further than the initial concussion had, but there is no way to know. All of my muscles atrophied because I was in such severe pain that I could hardly move during those six months. Although I don't have iicp anymore, or pseudotumor cerebri, I know how awful it can be because I experienced it for a short period of time. It was the most grueling experience of my entire life.

You are not alone.

Have you contacted the Intracranial Hypertension Research Foundation to see if there is a support group in your area?

Here's a link: http://www.ihrfoundation.org/

Pseudotumor cerebri has many names, and hydrocephalus is one of them and that's how it's labeled on this forum. I'm sure you can find other sufferers of this condition on this forum in that section. Found here: http://neurotalk.psychcentral.com/forum14.html

Much love and luck to you!!