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Member
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Join Date: Oct 2011
Location: Las Vegas, NV
Posts: 756
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Member
Join Date: Oct 2011
Location: Las Vegas, NV
Posts: 756
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Vent - Setbacks are so discouraging!!! (looking for advice and reassurance)
Well, here I am...smack dab in the middle of a setback. For awhile there (one week) I thought I was doing pretty good. I honestly thought my brain had healed and what I was dealing with was the new PCS standard...
I was dead wrong!!!
I'm right back to square one with horrific cognitive symptoms; trouble thinking, word finding difficulties, severely foggy brain, spaced out, forgetful, trouble following a conversation, trouble getting words and thoughts out right, disoriented...its all there. It took me a solid month of cutting myself off from the world and resting to get that one good week. I don't know how I'm going to get any rest now with my son here. He's really not too much trouble and usually sleeps through the night...but, after a day of taking care of him I'm usually spent.
At one point yesterday I was so foggy and spaced out I couldn't even respond to people that were talking to me. I was at an AutoZone store and I felt like I was going to float into space...or pass out and die.
What to do...what to do?
I'm gonna just try to keep my head up. If my brain had the ability to function well like it did for that week...I'd imagine it could do that again. I just hope it happens sooner than later and happens more often. Maybe I'll get 2 good weeks next time, huh?
I could only hope.
Has anyone else experienced a cognitive setback?
How did you deal with it?
Thanks, I hope everyone is doing well with their recovery.
Nick
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What happened: I was randomly assaulted from behind in June of 2011. I was knocked unconscious for an unknown amount of time (less than 30 minutes) and have no memory of the event. CT scan showed contusion and hematoma of the left frontal lobe. I spent 3 days in the hospital. Diagnosed with Post-Concussion Syndrome in September 2011. Currently have Medicaid, Medicare and SSI.
Current symptoms: Brain fog, mild memory issues, problems with spontaneity, occasional spacing out, word finding difficulties, tinnitus in right ear and some other things that I can't explain.
Life after the brain injury: 4 years after the injury, I'm engaged to my beautiful girlfriend of 5 years, I'm the CEO of my own business, Notorious Labs, I've taught myself how to program complex games and apps which is a feat I never thought I'd accomplish and now live a semi-normal life with very mild PCS symptoms.
Slowly but surely regaining my life back.
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