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Old 03-05-2012, 01:41 PM
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Nanc Nanc is offline
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Join Date: Jan 2011
Location: VA
Posts: 975
10 yr Member
Nanc Nanc is offline
Member
Nanc's Avatar
 
Join Date: Jan 2011
Location: VA
Posts: 975
10 yr Member
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So happy the block helped you! I think the blocks have to be administered early enough after diagnosis to be effective. A month is a long time to wait for another one.
I have had stellate ganglion blocks, quite a few!! I was initially diagnosed with RSD back in 1992 in the right side of my face. I was treated pretty aggressively with the blocks and medication. I received them once or twice a week and I cannot remember how many total were administered, but they helped! I was in remission for 13 years, then I had a bad flare in 2005 and it was treated with medication. Then in 2009, I hurt my right hand and everything changed! I developed RSD there and it seems it took forever to get a correct diagnosis (probably 1 1/2 yrs - don't get me started on these doctors - ugh!). My faced flared up then too. When I was finally diagnosed, they tried 6 blocks which didn't help much at all - it was really too late for them.
The RSD is now in my face, both hands, left arm and left leg. My new doctor tried blocks also (while I was awaiting approval for the SCS) and they didn't help much either. I wanted him to try them on the left side and he did, also did cervical and lumbar blocks...no relief until the SCS. I wanted him to rule out all treatments before getting the SCS.
I think that while the blocks this last go around didn't help so much of the pain, I do not have much discoloring of the effected areas. Except my hands tend to turn a purplish black color on part of them.

Good luck to you and I hope they continue to work for you!!
Nanc
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