Thank you en bloc

I will take the questions you asked with me to my appointment on wednesday, I believe you made some good points. I won't be seeing my neuro at that time but maybe I can get a message through to him. I will definately be following up with him in a few weeks after the ketamine is done. Thank you for your feedback and advice, I will be pushing a little further to get more results. Especially the skin biopsy.

As for the diagnosis of ganglioneuritis from an exam? Now I am really curious. How is it diagnosed with everyone else here? I know you have had the MRI to confirm - but you had the diagnosis before you had the MRI didn't you? I don't know if he has any papers on it, i'll have to ask him when I see him.

Mine is thought to be at the dorsal root ganglia cervical 8/thoracic 1 region. My pain is in my arms. Severe pain in my arms. I also have allodynia in my arms - but it is under control most of the time now with this alzheimer's medication! I am sorry you have the pain, but am glad you can control with just a limited amount of pain meds. Thank you again for your support and education, I will check back in on Thursday after my dr. app.

I really, really, appreciate your taking the time to talk with me. I just need someone to be a sounding board just like this now and then - it really helps!