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Member
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Join Date: Oct 2011
Location: Las Vegas, NV
Posts: 756
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Member
Join Date: Oct 2011
Location: Las Vegas, NV
Posts: 756
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Losing Hope / Getting Worse
I'm on day 5 of the worst setback/relapse I've ever had...and its not getting any better. I can not put in words how horrible my cognitive problems are. I don't mean just forgetting what I was saying/doing or getting lost. I mean...my brain is running on literally 1 out of 8 cylinders. I had trouble dressing myself today. Yesterday I was in the ER for the second time in 5 days because my brain shut down completely. I wasn't even able to speak.
I don't remember ever being this bad...even immediately after my injury and when my PCS symptoms showed up.
Sleeping doesn't help. Peace and quiet doesn't help. Its not over-stimulation because (besides the trips to the ER and one chiro appt) I haven't been doing anything...besides taking care of my son.
Its to the point I can just barely take care of my son. I have nobody to help with him...my mom works full time and goes to school, my younger siblings are too young and they go to school and my son's mother is transient.
Do any of you guys experience things like this? I don't get it. I've heard of people having relapses with headaches or dizziness but not a cognitive relapse where the brain stops working completely.
I'm at 9 months...things should be getting better, not worse, right?
It took me an hour to write this.
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What happened: I was randomly assaulted from behind in June of 2011. I was knocked unconscious for an unknown amount of time (less than 30 minutes) and have no memory of the event. CT scan showed contusion and hematoma of the left frontal lobe. I spent 3 days in the hospital. Diagnosed with Post-Concussion Syndrome in September 2011. Currently have Medicaid, Medicare and SSI.
Current symptoms: Brain fog, mild memory issues, problems with spontaneity, occasional spacing out, word finding difficulties, tinnitus in right ear and some other things that I can't explain.
Life after the brain injury: 4 years after the injury, I'm engaged to my beautiful girlfriend of 5 years, I'm the CEO of my own business, Notorious Labs, I've taught myself how to program complex games and apps which is a feat I never thought I'd accomplish and now live a semi-normal life with very mild PCS symptoms.
Slowly but surely regaining my life back.
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