Hi,
I had contusions like you in both frontal and temporal lobe and has permanent brain softening. I didn't have any blood clots but sure there is some damage.

I had the same feeling 1 year ago and even wrote all kinds of wills (do not resuscitate etc.,). Didn't have too much money but whatever I have goes to good cause and charity.

I didn't tell my family or friends of course or I end in some mental institute I guess. But I didn't go through the plan. I don't think I will ever because some one asked me do you know where you end up? May be worse than what I am in. I don't know.

I had a setback 2 weeks ago (is this set back season or what)? I was about to faint while I was driving and ended up in ER. I had severe pain too this time- all over from top to bottom. Thought I had a stroke. Took a CT scan which came out fine. They gave me toradol which did nothing. My ER doctor (great ER doc) wants to try dilauded and explained why. Just to break the pain cycle and also find out pain is the main culprit for my symptoms. And she was right. First time ever I felt relief after close to 3 years.

So this happened after close to 3 years after consulting very many specialists, therapists etc.,. Some Neurologists told me to live with it and it is as good as it gets. But now I am back to Neurologist, therapy etc., Don't give up just because one Neurosurgeon said something very un-compassionate.

My journey is not over and still a long journey. Like greenfrog said you felt better in the past and you will get there. But don't put a time frame. It doesn't work that way and set backs seems like something we have to be ready for.

I know I cannot completely relate what you feel but keep up your spirit.