Nick,

A case manager is a person who coordinates you care among the various specialties. Some times, they are social workers. The best are Registered Nurses. I have a niece who is an RN and is finishing a Master degree in Case Management.

They can help you through the maze of forms and people.

There are numerous people in the world who have undergone hemispherectomies. One of the pioneers was a Neuro Surgeon named Ben Carson. He was determined to help patients who could not live with the seizures they experienced. Intractable seizures can slowly damage a brain until the patient dies.

Here is a link to the Hemispherectomy Foundation. http://hemifoundation.intuitwebsites.com/stories.html

Now, the stories there are a testament to perseverance and love of life.