Told you that you were concerned about nothing,,,this is medicine, they do not do more than they have to!!,,no fair, more like if it ain't broke don't fix it,

No, I am not a nurse and do not come from (personally) a medical background. I began having medical problems in my early 20's and decided early on that if they could understand it so could I. So I learned and as well being military dependents in the era of "if the military had wanted you to have dependents they would have issued you them" I learned early that for my children to get the care that my husband was risking his life for I was going to have to be educated, and persistent. So that's what I did. In the long run it has paid off, especially after I got sick, things happen for a reason......even this.

I actually enjoyed very much running a support group the problem was people would come and want another answer to TN which we didn't have, no one did. So people came and went but in all we helped a number of people. We kept lists of medications what people had success with and not, side effects. Lists of good physicians in the area, so if you wanted a new neuro we had a list that other members had recommended, things like that. We had a phone chain going for a while and I think some real friendships were made but it's been a while......
I think I enjoyed it because it kept my mind off my own situation and I needed that.
I still take phone calls when people go to the TN website and can't get it touch with anyone local they just start dialing so I spoke with lots of folks that way......I may do it again, if I ever sell my house and move to Dayton where my husband is, it's been 2 years and even for us that's just too long,,,,,,

So to Frank,,,how the hell did you burn out three units?? what are you doing to them? I am fascinated one I can see as a bad unit but three wow!!! I'm impressed,,,and may I ask where do you live that they are making you wait this long for a replacement?? Prisoners get better treatment, that's cruel and unusual punishment,,,I've only had mine a few weeks and it does not cover all my pain but I can't see ever giving it back,,,,in fact,,I have permanent nerve damage in my leg and I am already considering having them put one in my back,,,and yes there are a few people who have two units, but not three,,I asked,,,,I wonder where??? well it's always nice to be the first at something!!!
Really Frank did they say it was something to do with you or the units....I'm still in wow factor, three units,,,,if you're comfortable give us a bit more info on that,,I'm enormously curious now.

Well, need to shove off, all I can say now is in your bedtime prayers add FDA approval this year...there are so many people that this could help...I thank God for giving me this blessing and I pray that this will become available to more and more people,,,quickly.
Nite to all, pleasant dreams and pain free nites,,,,