Hi 89danboy, I too have full body RSD, and your description is me in a nutshell. My good days usually only last a few days tho. I have had a couple of aprox. two week in length reprieves. I feel like I have died and gone to heaven when i do. Most of the time I am in bed because of the pain & swelling. Just recently my Dr. ordered, and I have gotten custom circaid justafit compression braces (not the prettiest things) for my leg swelling and do self-manual lymphatic massages (you can find technique demos on YouTube) several times daily that have really helped with the severe swelling in my legs & arms. Over a 2 month period I have lost 6 inches in calves, 4 inches in ankles, the compression braces keep it from re-swelling. Some trouble getting used to because of sensitivity but so worth it. Also, just recently tried DMSO gel 99.9 Purity 70% Strength rubbed onto legs, lower back, wrists, elbows, and have been amazed at how much it helps with the pain (doesn't take it all away but brings it to what I call a manageable level that allow my meds to work for me). Tried pool therapy, but had bad experience when getting out of pool & got chilled, flared me up bad, so a little reluctant to do that again. Felt great while in the pool but not worth what I went thru when I got out. Anyway enough rambling, hope you find some relief that works for you, seems so different for all of us.