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Old 03-09-2012, 10:36 AM
89danboy 89danboy is offline
Junior Member
 
Join Date: Jan 2012
Location: Eggharbor twp nj
Posts: 86
10 yr Member
89danboy 89danboy is offline
Junior Member
 
Join Date: Jan 2012
Location: Eggharbor twp nj
Posts: 86
10 yr Member
Default Oregon ducks rule!

Hi thacker, I know you can relate to me having full body,I am waiting to have my kettiamine injects again . That really helped me.I did a 10 day outpatient of kett injts and lost 23 pounds during the 10 days.it was all the inflammation in my face & body.and it really helps., only thing is insurance doesn't pay.I start getting my dissability ss this week .they won't take that insurance either.but my workers comp will pay it after we settle.hope all is well in Oregon .I'm a big football fan . Go ducks

1]Hi 89danboy, I too have full body RSD, and your description is me in a nutshell. My good days usually only last a few days tho. I have had a couple of aprox. two week in length reprieves. I feel like I have died and gone to heaven when i do. Most of the time I am in bed because of the pain & swelling. Just recently my Dr. ordered, and I have gotten custom circaid justafit compression braces (not the prettiest things) for my leg swelling and do self-manual lymphatic massages (you can find technique demos on YouTube) several times daily that have really helped with the severe swelling in my legs & arms. Over a 2 month period I have lost 6 inches in calves, 4 inches in ankles, the compression braces keep it from re-swelling. Some trouble getting used to because of sensitivity but so worth it. Also, just recently tried DMSO gel 99.9 Purity 70% Strength rubbed onto legs, lower back, wrists, elbows, and have been amazed at how much it helps with the pain (doesn't take it all away but brings it to what I call a manageable level that allow my meds to work for me). Tried pool therapy, but had bad experience when getting out of pool & got chilled, flared me up bad, so a little reluctant to do that again. Felt great while in the pool but not worth what I went thru when I got out. Anyway enough rambling, hope you find some relief that works for you, seems so different for all of us.[/QUOTE]
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