Quote:
Originally Posted by Scott_S
I love the idea of getting all of you to help me second guess my treatments
I like my Neuro. Especially because, although he did not say it at the time, I think he had me diagnosed within 10 minutes of talking with me. After confirmation he told me about MG.
I've had symptoms for about 6 months limited to speech and eating/swallowing problems. I was diagnosed in January. I need to control the speech as It will definitely cost me my straight commission sales job (I sell high end german cars). I afraid I can't afford to loose my job and health benefits at 60.
The Mestinone has helped but not 100% in controlling symptoms. We did 3 days of IVIG and I was symptom free, but only for 10 days or so.
I guess the options are:
1) IVIG every couple of weeks?
2) Plasmaphoresis?
3) AI chemo?
Just checking to see if I have a good understanding of my situation.
|
my husband went three years with IVIG x2 azathioprine which helped but he had a reaction to so had to stop...cell cept and low dose prednisone... what helped was a higer dose prednisone 60mg a day and then after 2 weeks decreasing...within 2-3 weeks he was symptom free he is now on cellcept and 15mg prednisone every other day and symptom free since for 7 months