Hey I noticed you said you were living in Ireland also.
I was fortunate enough to find a physio who noticed an elevated first rib within a minute.
This was after I had spent a week in hospital under "the top neurology tem' apparently!! Since then I have kept returning to the same physio when my arm kept "going" i.e weakness coldness, discolouration, tingling, numbness and PAIN!!!!! Unfortunately he told me that he could do no more for me and I should be referred to a consultant.
Since then I have had the world of tests done and I am under a very good vascular surgeon in a DIFFERENT hospital..he cannot believe the lack of treatment I received in the first hospital,, and that i was not even referred to a vascular surgeon! He finally diagnosed me with TOS but he does not believe it is vascular,,which I find it very hard to get my head around.
Would love to hear your story., its great to talk to someone who KNOWS exactly how frustrating this is..
Laura