Quote:
Originally Posted by 4-eyes
Hi,
Scott, have you tried prednisone? That usually works very quickly and can be good to get on board while choosing another, slower acting immunosuppressor. Since your symptoms are mostly bulbar and ocular, do you have MuSK MG? If so, that is more difficult to treat and requires slightly different treatment.
Good luck...keep searching for answers!
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Thanks for the reply. My symptoms are almost all speech and eating/swallowing related. No problem with eye lids, but my eyes do 'tire' (burn) from time to time.
Prednisone has helped, but I still experience speech problems in my job about ever other day or so. Eating is often a chore, not a pleasure.
My Neuro never mentioned MuSK MG, so I guess I don't have that. I think he know what I had from the start, but one of the confirmations was the presence of MG specific antibodies in a blood test.