So very sorry you have this hellish disorder and I have to tell you that everyone is different and ALL doctors say they will help you beat it and I sincerely hope that CAN help you. PT is very painful, but you will have to continue for a long time. I loved the warm ultra sound thingy, but it only helped for a while. I also have Cerebral Palsy and I think that's why mine progressed so fast because I have never walked correctly.

Prayers for you!
Cindi